My only good is to be left be: Configurations on independent living for people with intellectual disabilities

In this article, we address the question: What are the perceptions of Independent Living (IL) held by people with intellectual disabilities themselves? We present an analysis of 14 semi-structured interviews conducted between June and December 2024 with individuals with intellectual disabilities age...

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Autores principales: Carmona Gallego, Diego, Perlo, Claudia Liliana
Formato: Artículo revista
Lenguaje:Español
Publicado: IRICE (CONICET-UNR) 2026
Materias:
ethics of care
independent living
autonomy
intellectual disability
ética del cuidado
vida independiente
autonomía
discapacidad intelectual
Acceso en línea:https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189
Aporte de:
Revista IRICE (CONICET) de Universidad Nacional de Rosario
id I15-R240-article-2189
record_format ojs
spelling I15-R240-article-21892026-05-26T17:51:07Z My only good is to be left be: Configurations on independent living for people with intellectual disabilities Mi bien es que me dejen: configuraciones sobre vida independiente en personas con discapacidad intelectual Carmona Gallego, Diego Perlo, Claudia Liliana ethics of care independent living autonomy intellectual disability ética del cuidado vida independiente autonomía discapacidad intelectual In this article, we address the question: What are the perceptions of Independent Living (IL) held by people with intellectual disabilities themselves? We present an analysis of 14 semi-structured interviews conducted between June and December 2024 with individuals with intellectual disabilities aged 21 and older who work in a supported employment center in Andalusia, Spain. The results show that IL is perceived as a multidimensional concept encompassing both an individual dimension –focused on autonomy in daily functioning, employment and personal financial resources, independent housing, normalization, and empowerment– and a social dimension, centered on aspects such as rights, questioning professional and family intervention methods, solitude, intimacy, and social transformation. The subordination of IL to the individual dimension, particularly to the development of autonomy in execution, is identified as a problematic issue. This subordination creates inequalities among people with disabilities, weakens the political origins of the IL proposal, and reinforces the fiction of self-sufficiency. In contrast, the social dimension of IL highlights relational, institutional, and societal factors while still recognizing the relevance of individual aspects. En este artículo nos ocupamos de profundizar sobre la pregunta: ¿Cuáles son las percepciones en torno a la vida independiente (VI) que presentan las propias personas con discapacidad intelectual? Presentamos el análisis de 14 entrevistas semiestructuradas realizadas entre junio y diciembre del 2024 a personas con discapacidad intelectual mayores de 21 años que trabajan en un contexto organizativo de Andalucía (España) dedicado a su inclusión laboral. Los resultados advierten que la VI es percibida como un concepto multidimensional que implica tanto una dimensión individual, focalizada en la autonomía de ejecución, tener trabajo y recursos económicos propios, la vivienda independiente, la normalización y el empoderamiento; así como una dimensión social, centrada en aspectos como los derechos, la interpelación a los modos de intervención profesionales y familiares, la soledad/intimidad y la transformación social. Se observa como problemática la subordinación de la VI a la dimensión individual, en particular al desarrollo de la autonomía de ejecución. Esta subordinación genera desigualdades entre las personas con discapacidad, debilita el origen político de la propuesta de VI, así como también refuerza la ficción de la autosuficiencia. En contraste, la dimensión social de la VI permite identificar aspectos relacionales, institucionales y sociales, al tiempo que reconoce la importancia de aspectos individuales. IRICE (CONICET-UNR) 2026-05-26 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf text/html application/zip https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189 Revista IRICE; Núm. 50 (2026); e2189 2618-4052 0327-392X spa https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189/3532 https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189/3533 https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189/3534 Derechos de autor 2026 Diego Carmona Gallego, Claudia Liliana Perlo https://creativecommons.org/licenses/by-nc-sa/4.0
institution Universidad Nacional de Rosario
institution_str I-15
repository_str R-240
container_title_str Revista IRICE (CONICET)
language Español
format Artículo revista
topic ethics of care
independent living
autonomy
intellectual disability
ética del cuidado
vida independiente
autonomía
discapacidad intelectual
spellingShingle ethics of care
independent living
autonomy
intellectual disability
ética del cuidado
vida independiente
autonomía
discapacidad intelectual
Carmona Gallego, Diego
Perlo, Claudia Liliana
My only good is to be left be: Configurations on independent living for people with intellectual disabilities
topic_facet ethics of care
independent living
autonomy
intellectual disability
ética del cuidado
vida independiente
autonomía
discapacidad intelectual
author Carmona Gallego, Diego
Perlo, Claudia Liliana
author_facet Carmona Gallego, Diego
Perlo, Claudia Liliana
author_sort Carmona Gallego, Diego
title My only good is to be left be: Configurations on independent living for people with intellectual disabilities
title_short My only good is to be left be: Configurations on independent living for people with intellectual disabilities
title_full My only good is to be left be: Configurations on independent living for people with intellectual disabilities
title_fullStr My only good is to be left be: Configurations on independent living for people with intellectual disabilities
title_full_unstemmed My only good is to be left be: Configurations on independent living for people with intellectual disabilities
title_sort my only good is to be left be: configurations on independent living for people with intellectual disabilities
description In this article, we address the question: What are the perceptions of Independent Living (IL) held by people with intellectual disabilities themselves? We present an analysis of 14 semi-structured interviews conducted between June and December 2024 with individuals with intellectual disabilities aged 21 and older who work in a supported employment center in Andalusia, Spain. The results show that IL is perceived as a multidimensional concept encompassing both an individual dimension –focused on autonomy in daily functioning, employment and personal financial resources, independent housing, normalization, and empowerment– and a social dimension, centered on aspects such as rights, questioning professional and family intervention methods, solitude, intimacy, and social transformation. The subordination of IL to the individual dimension, particularly to the development of autonomy in execution, is identified as a problematic issue. This subordination creates inequalities among people with disabilities, weakens the political origins of the IL proposal, and reinforces the fiction of self-sufficiency. In contrast, the social dimension of IL highlights relational, institutional, and societal factors while still recognizing the relevance of individual aspects.
publisher IRICE (CONICET-UNR)
publishDate 2026
url https://ojs.rosario-conicet.gov.ar/index.php/revistairice/article/view/2189
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first_indexed 2026-06-04T05:09:30Z
last_indexed 2026-06-04T05:09:30Z
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